Discussion

I needed to disable self-signups because I’ve been getting too many spam-type sign-ups lately. Please contact me directly if you want membership on this forum. Thanks.

Forum Navigation
Please to create posts and topics.

Arena Progress Report

After 3.5 months om the diet:

VA serum levels has dropped from 1.8 µmol/L to 1.5 µmol/L (blood work gotten at 3 months mark, GP just got back to me).

Diet: rice, black beens, beef, 1 banana and 1 apple a day, gluten free bread (contains some corn starch, sunflower seeds and flax seeds), almond milk (fortified with some B12, D, E, B2 ), 25 mg zinc a day (upped to 50mg a day last two weeks), 200 mg VC (upped to 400 mg a day last two weeks), potato chips, raisins. I took taurine and activated charcoal for 3.5 weeks in July, but at the 3.5 weeks mark my eyes got so bad I stopped). I also eat the occasional gluten free beef hamburger with fries, just because I exercise so much I need the calories.

Health: I am fit and strong, all my issues are limited to really dry eyes, eczema, scalp issues (keratinization). All this I could live with, but the eyes.. man... Eczema comes and goes, and actually manifested itself on my right hand fingers after starting the diet, which has not happened before. None of my issues have gotten better, really. Also I need to pee all the time, which sucks. I drink a lot of water though, but not before bed, and I still have to get up each night, sometimes several times. Also I feel the occasional fatigue.

Hi @are,

Hi 

Thanks for sharing your update.

If you are planning on continuing with the diet, here are a few changes you might consider.

Try dropping the sunflower seeds because their lecithin content may be a factor.  Lecithin is reported to pull vA out from the RBPs.

Check to make sure that your almond milk brand does not include vA palmitate. In the USA it is no longer required to include the vA content on the nutrition label.

Also, both sunflower seeds and almond milk contain significant amounts of vitamin E, and that could be a factor too.

I found that taking taurine caused me to pee all the time, and more urgently too. 

I hope this helps.

Grant

 

Arena has reacted to this post.
Arena

@ggenereux2014

Thanks for the tips, and of course I’m continuing, this is the only hope I have left, I’m clinging on! I assume you would want me to continue as well? Would be awesome if I keep dropping on the VA blood tests too!

1) OK, I’ll drop the bread

2) the almond milk contains: water, almond, tricalcium phosphate, sea salt, stabilizers (locust bean gum), emulsifiers (lecithin), vitamins mentioned above

3) since you mention vitamin E, should I cut out the potatoe chip as well? I really need my calories, and I can’t eat any more rice and beans. I eat probably 250-300 g rice a day (almost gives me constipacion, apples help with that), and 250-300 g beans a day. 

@are About the peeing, lower your water intake, and up the salt intake(sodium and potassium), most people drastically over do it on water intake.   You are a salt water ocean on the inside, flushing it with tons of fresh water every day, not a good idea, you get plenty of water from food,  keep drinking your liquids away from meals.    Peeing all that water out, is your body trying to balance your electrolyte levels.

Also 3.5 months is a short time, keep at it 🙂   I am closing in a 2yrs, still have ups and downs, and accutane is a real unknown for us, feels like now it will 4yrs time for me to get out of this hole, per the way things are healing.

puddleduck and Arena have reacted to this post.
puddleduckArena

@are do potatoes do well with you?  homemade fries, mashed, baked...

You should avoid flax seeds too, from what I have read, that are not good in any quantity really.  Can you find bread without the seeds?    I use sprouted wheat bagel and breads, they work ok with me.

puddleduck has reacted to this post.
puddleduck

@orion

I drink a lot of water because if I don’t my eyes get to..tally f’ed. But yes I can try upping my salt a little bit. Scared of too much salt because of my eyes getting dehydrated.

thanks for the encouraging words! It helped when you said how much better your eyes are after 2 years.

I think potatoes goes well with me. I mostly just eat a little chips a day for the calories, but yeah, I could vary that a little and mix things up!

puddleduck has reacted to this post.
puddleduck
Quote from Arena on August 17, 2020, 6:12 am

@orion

I drink a lot of water because if I don’t my eyes get to..tally f’ed. But yes I can try upping my salt a little bit. Scared of too much salt because of my eyes getting dehydrated.

thanks for the encouraging words! It helped when you said how much better your eyes are after 2 years.

@are

@are  yes really up the salt, it will help you hold on to your water and you can drink less, and hopefully help your eyes.  May seem weird but drinking too much water, maybe adversely affecting your eyes.  Or trade your water for a homemade gatorade, you can buy KCl in bulk online, or buy the 50/50 nosalt mixes at the supermarket.   You really want to slowly up the potassium and sodium and chloride.   Potatoes are a good way to up potassium and salt them liberally to taste.

I usually mix salt, potassium chloride, magnesium chloride and some gatorade powder together to drink every day.

 

 

puddleduck and Arena have reacted to this post.
puddleduckArena

I'm assuming it is summer there, @are?  (btw, thanks for the update!)  I find that my eyes feel dry after being outside getting sunlight.   You can moderate how much sunlight gets in your eyes, enough to cause just a little upset, and not a lot.

As you say, being dehydrated doesn't help at all, but I don't pound down water, that can goof up my gut.  I make myself a vinegar drink when I've really been sweating.  I heavily salt food but that is what has always tasted good to me.  Even the smallest bit of alcohol seems to suck my eyes dry (haha but I still drink a little because I have no common sense).

I think the light helps in the long run.  The next day I could swear they are better for the upset. 

For me, there seems to be upset capillaries both in the eyeball and in the inner lid.  

Tiny upset capillaries seems to be a recurring theme in my condition, and something that is getting better.  In my opinion, the eyes will start feeling much better once the little capillaries are feeling much better.  I can see slow progress on them throughout my body. It might take several seasons to repair all the leaves on the tree of the circulatory system. 

I wonder, could capillary damage be about zinc deficiency?  and/or VC?  Perhaps VC co-factors like flavanoids?   Maybe the brainiacs here know... 🙂 

It seems to me that the tiny little pimples along the eye lid might be one way that the eye is detoxing.  Hubs had them before I did, but now all of his have resolved.  Mine are still slowly resolving.    The whites of my eyes are getting whiter, but it is slow.  (at 14 months or so).   I'm seeing a few more eyelashes too.

I once was told those tiny eye-margin pimples were from eating too much fat.  Now I think they were close... VA arrives in fats...

I now think about all pustules as detox...  acne is detox...  Better out than in, as Shrek says...

puddleduck has reacted to this post.
puddleduck
Quote from Arena on August 17, 2020, 3:30 am

After 3.5 months om the diet:

VA serum levels has dropped from 1.8 µmol/L to 1.5 µmol/L (blood work gotten at 3 months mark, GP just got back to me).

@are  Just wanted to add that dropping from 50µg/dL to 42µg/dL in 3 months is a good sign.

puddleduck has reacted to this post.
puddleduck
Quote from Arena on August 17, 2020, 5:54 am

@ggenereux2014

Thanks for the tips, and of course I’m continuing, this is the only hope I have left, I’m clinging on! I assume you would want me to continue as well? Would be awesome if I keep dropping on the VA blood tests too!

1) OK, I’ll drop the bread

2) the almond milk contains: water, almond, tricalcium phosphate, sea salt, stabilizers (locust bean gum), emulsifiers (lecithin), vitamins mentioned above

3) since you mention vitamin E, should I cut out the potatoe chip as well? I really need my calories, and I can’t eat any more rice and beans. I eat probably 250-300 g rice a day (almost gives me constipacion, apples help with that), and 250-300 g beans a day. 

RE: I assume you would want me to continue as well?

Yes, I'd hate to see people drop out too soon. But, somehow we need to make the progress more predictable, and not have people develop worse health. I hope lowering the lecithin, etc, helps turns things around for you.

Thanks

Grant

Jenny and puddleduck have reacted to this post.
Jennypuddleduck