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C.B's Log and progress
Quote from C B on October 16, 2019, 7:30 pmWill log my symptoms cronologically, it's a long list!
55 year old female
2013 - I get an eye allergy/ redness/ watering which lasts for about a year, doctors and opthalmologist ( I saw two) have no idea after tests. I stop using cosmetics/products and it passes but still gets red now and then.
2014 - Tibial Osteotomy Doctor said I was too young for a knee replacement, right knee was bone on bone. Lost the hearing in my right ear later that year, it is about 70% loss now, loud tinnitus. all tests and scans came back negative, doctors said nerves just died.
2015 - Excrutiating pain in my right forearm elbow, which then over time travelled all through my body, from my head to my toes, deep aching, tingling, numbing, burning. All tests/scans/ MRI's came back negative, Rheumatologist said it will pass, some people just get pain.
2016 - Loud noises started in my head, not like the Tinnitus in my ear which is like the sound of the ocean, this sound is like jet engines, dinging, humming etc
2017 - I had a sharp pain in my left ring finger which felt like nerve pain, then a blister type sore appears on my wrist which takes a while to heal, no one knew what it was.
2018 - Electrical type currents running through my body when trying to sleep. Start of cronic pain, right side from under breast down to groin. This pain continues on and off, but more near the liver now. Had pelvic scans and xrays, nothing found. All organs are good.
2019 - Diagnosis of Fibromyalgia ( what they give you when they can't find anything else) and Psoriasis. A visit to hosptial emergency with severe vertigo, not known cause, but took about 4 weeks to lessen in severity.
As well as the body pain, I have had many fungal ear infections, cysts on differing parts of the body, slight Rosacea on face, weird skin nodules that came up on my forearms and legs, premature age type spots that have appeared over the last couple of years as well as spider veins. I also have had hives appear out of nowhere. Fuzzy head, inability to concentrate, loss of memory, forgetfulness. Depression, anxiety.
I have felt like my body has been slowly dying or being poisoned over the last 5 years or so, I always feel like I am coming down with something, or getting a virus then nothing happens, sore throat, sore body, fever, headache, then it passes and something else comes along. I gave up seeing my doctor about every little thing. My eyes have also worsened, I have needed a stronger prescription glasses every year.
I decided to start a Ketogenic diet about a year ago, for the first 4 months I felt great, lost some weight, then slowly began to feel worse, I started on Vitamins, loads of D, Fish oil, Multi B, filling up on dairy, leafy greens, eggs.......yep you know the story, I wasnt getting any better. Started to get what I though was dermatitis which has now been diagnosed as Psoriasis, it's not bad, just a few small patches, but that's my Auto Immune disease, I knew I would get something with all this toxic poison running through my body.
Every doctor I have seen including 2 Rhuematologists, 2 Opthamologists, 4 Ent's, 2 Dermatologists, many blood tests and xrays. scans can find nothing. I understand they are trained to treat the symptons and are not bothered to find the real reason. I have had comments like " most people over 50 will get some Auto Immune disease" really?? " Some people get body pain" "you will just have to live with it" and so on.
I stopped dairy about a month ago, while still continuing a Ketogenic lifestyle, having been on some Psoriasis forums, dairy seemed to be the culprit, I felt better for a while, until I ate some Sweet Potato, and I flared up in a red rash on my chest, my face was inflamed and knew there was something more, which let me to vitamin A Toxicity and here.
For the past 2 weeks I have been eating a low VA diet, I signed up to Dr Garrets Smiths site to get more info on foods etc I can honestly say that I feel better, it looks like the psoriasis patches are fading, no new ones, last weekend I had the best nights sleep and woke feeling rested yay!! Time will tell for the rest.
On pondering why I have this toxic overload, I took large doses of Spirulina from about 1995 to 2010, everyday, thinking it was doing me good, then what I thought was the healthy version Keto diet, very high in Vitamin A.
Thankyou to all who have posted your experience, I finally feel like I have found a way to get my health back.
Will log my symptoms cronologically, it's a long list!
55 year old female
2013 - I get an eye allergy/ redness/ watering which lasts for about a year, doctors and opthalmologist ( I saw two) have no idea after tests. I stop using cosmetics/products and it passes but still gets red now and then.
2014 - Tibial Osteotomy Doctor said I was too young for a knee replacement, right knee was bone on bone. Lost the hearing in my right ear later that year, it is about 70% loss now, loud tinnitus. all tests and scans came back negative, doctors said nerves just died.
2015 - Excrutiating pain in my right forearm elbow, which then over time travelled all through my body, from my head to my toes, deep aching, tingling, numbing, burning. All tests/scans/ MRI's came back negative, Rheumatologist said it will pass, some people just get pain.
2016 - Loud noises started in my head, not like the Tinnitus in my ear which is like the sound of the ocean, this sound is like jet engines, dinging, humming etc
2017 - I had a sharp pain in my left ring finger which felt like nerve pain, then a blister type sore appears on my wrist which takes a while to heal, no one knew what it was.
2018 - Electrical type currents running through my body when trying to sleep. Start of cronic pain, right side from under breast down to groin. This pain continues on and off, but more near the liver now. Had pelvic scans and xrays, nothing found. All organs are good.
2019 - Diagnosis of Fibromyalgia ( what they give you when they can't find anything else) and Psoriasis. A visit to hosptial emergency with severe vertigo, not known cause, but took about 4 weeks to lessen in severity.
As well as the body pain, I have had many fungal ear infections, cysts on differing parts of the body, slight Rosacea on face, weird skin nodules that came up on my forearms and legs, premature age type spots that have appeared over the last couple of years as well as spider veins. I also have had hives appear out of nowhere. Fuzzy head, inability to concentrate, loss of memory, forgetfulness. Depression, anxiety.
I have felt like my body has been slowly dying or being poisoned over the last 5 years or so, I always feel like I am coming down with something, or getting a virus then nothing happens, sore throat, sore body, fever, headache, then it passes and something else comes along. I gave up seeing my doctor about every little thing. My eyes have also worsened, I have needed a stronger prescription glasses every year.
I decided to start a Ketogenic diet about a year ago, for the first 4 months I felt great, lost some weight, then slowly began to feel worse, I started on Vitamins, loads of D, Fish oil, Multi B, filling up on dairy, leafy greens, eggs.......yep you know the story, I wasnt getting any better. Started to get what I though was dermatitis which has now been diagnosed as Psoriasis, it's not bad, just a few small patches, but that's my Auto Immune disease, I knew I would get something with all this toxic poison running through my body.
Every doctor I have seen including 2 Rhuematologists, 2 Opthamologists, 4 Ent's, 2 Dermatologists, many blood tests and xrays. scans can find nothing. I understand they are trained to treat the symptons and are not bothered to find the real reason. I have had comments like " most people over 50 will get some Auto Immune disease" really?? " Some people get body pain" "you will just have to live with it" and so on.
I stopped dairy about a month ago, while still continuing a Ketogenic lifestyle, having been on some Psoriasis forums, dairy seemed to be the culprit, I felt better for a while, until I ate some Sweet Potato, and I flared up in a red rash on my chest, my face was inflamed and knew there was something more, which let me to vitamin A Toxicity and here.
For the past 2 weeks I have been eating a low VA diet, I signed up to Dr Garrets Smiths site to get more info on foods etc I can honestly say that I feel better, it looks like the psoriasis patches are fading, no new ones, last weekend I had the best nights sleep and woke feeling rested yay!! Time will tell for the rest.
On pondering why I have this toxic overload, I took large doses of Spirulina from about 1995 to 2010, everyday, thinking it was doing me good, then what I thought was the healthy version Keto diet, very high in Vitamin A.
Thankyou to all who have posted your experience, I finally feel like I have found a way to get my health back.
Quote from pano200 on October 16, 2019, 7:45 pmKeep at it! things should get better as you go along. I've been on the low VA diet for 13 months now. On day 3 of the diet I had a massive detox dump in my system and i had these weird electrical currents and paresthesias when i'd goto sleep too. Just interesting that other people have experienced that and not just me. Well it's never not "just me" as you kinda figure out pretty quickly on the internet.
Keep at it! things should get better as you go along. I've been on the low VA diet for 13 months now. On day 3 of the diet I had a massive detox dump in my system and i had these weird electrical currents and paresthesias when i'd goto sleep too. Just interesting that other people have experienced that and not just me. Well it's never not "just me" as you kinda figure out pretty quickly on the internet.
Quote from C B on October 16, 2019, 8:16 pmThanks for commenting Pano200, perhaps toxic A affects the nervous system in many ways we just don't know about. My experience was like my heart would not let my brain relax, every time I would think I was going to sleep my heart would jump start me awake.
Up until about a month ago I was taking large amounts of Vitamin D and K2 and was getting heart palpitations during the day, which have ceased since I have stopped taking them. I have gone cold turkey on Vitamins and will see how I go for a while.
I have always been determined to find a way back without steroids/painkillers.
Thanks for commenting Pano200, perhaps toxic A affects the nervous system in many ways we just don't know about. My experience was like my heart would not let my brain relax, every time I would think I was going to sleep my heart would jump start me awake.
Up until about a month ago I was taking large amounts of Vitamin D and K2 and was getting heart palpitations during the day, which have ceased since I have stopped taking them. I have gone cold turkey on Vitamins and will see how I go for a while.
I have always been determined to find a way back without steroids/painkillers.
Quote from pano200 on October 16, 2019, 8:27 pmAh, my experience was more of a electrical wave going thru my body, scary at first since i had no idea what it was. Was about to run to the emergency department because i had a similar issue before when i took a bit too much potassium.
Tons of supplements out the window for me. Definitely no vitamin D. Vitamin k2 i had reactions to early on in the diet, quit for awhile, got back on it, had really bad teeth sensitivity due to it, and quit it again.
Basically my main ones i'm taking are zinc, molybdenum, and taurine. taurine has been AMAZING for me. calmed all my skin issues down, especially dandruff.
Ah, my experience was more of a electrical wave going thru my body, scary at first since i had no idea what it was. Was about to run to the emergency department because i had a similar issue before when i took a bit too much potassium.
Tons of supplements out the window for me. Definitely no vitamin D. Vitamin k2 i had reactions to early on in the diet, quit for awhile, got back on it, had really bad teeth sensitivity due to it, and quit it again.
Basically my main ones i'm taking are zinc, molybdenum, and taurine. taurine has been AMAZING for me. calmed all my skin issues down, especially dandruff.
Quote from C B on October 16, 2019, 8:36 pmPano200, I log all my food on Cronometer, I am concerned about Calcium, VitE and Folate (B9) which I am not getting much of, but I still have a lot of reading to do to learn more. I have never taken Taurine, will look into that one later, thanks
Pano200, I log all my food on Cronometer, I am concerned about Calcium, VitE and Folate (B9) which I am not getting much of, but I still have a lot of reading to do to learn more. I have never taken Taurine, will look into that one later, thanks
Quote from pano200 on October 17, 2019, 7:04 amQuote from Orion on October 17, 2019, 5:27 am@pano200 how much taurine do you use daily? I use about 200mg to 500mg per day. Thanks
currently doing about 1000mg daily. i think 300-1000mg has been good for me so far.
Quote from Orion on October 17, 2019, 5:27 am@pano200 how much taurine do you use daily? I use about 200mg to 500mg per day. Thanks
currently doing about 1000mg daily. i think 300-1000mg has been good for me so far.