Quote from Joseph on September 26, 2025, 9:30 pm

This is another disease with unknown cause, no cure and increasing prevalence. On reddit there are women in their teens and twenties being diagnosed (prognosis is terminal in 3-5 years).. 
In this study by the NIH posted at https://pmc.ncbi.nlm.nih.gov/articles/PMC7314934/ it was found that ALS sufferers and "mimics" had elevated vitamin a and vitamin e serum levels compared to controls. Also, strangely, the ALS mouse treated with retinoic acid fared poor. It says several times in this analysis that the results of studies involving vitamins in these neurodegenerative diseases is "controversial". Gee I wonder why.
Why I bring up gaslighting - behold - THE PREMIERE ALS DOCTOR in my region, Richard Bedlack:The guy has a list of bona fides from the establishment which is longer than a whale's love harpoon:

He has won awards for teaching and patient care, including best Neurology teacher at Duke, Health Care Hero, Strength Hope, and Caring Award, America’s Best Doctor, the American Academy of Neurology Patient Advocate of the Year, the Rasmussen ALS Patient Advocate of the Year, Forbes-Norris Award, and Hop-On-A-Cure AMP Award. He has received ALS research grants, participated in ALS clinical trials, and published more than 160 ALS articles. He is the leader of the international ALSUntangled program which utilizes social networking to investigate alternative and off-label treatment options for patients with ALS, and leader of the ALS Reversals program which attempts to understand why some people with ALS recover from it, and to make this happen more often.

I'm tellin' ya, guys and gals, the struggle is real out there..

I dug into the ALS Untangled site and found something interesting. One case of a man who apparently reversed his ALS with a single dose of ayahuasca. He was dismissed as a "mimic" (there's that word again!). But the best part is the disclosure statement of the esteemed team at ALS Untangled:

Disclosure statement

ALSUntangled is sponsored by the ALS Association and the Motor Neurone Disease Association. Richard Bedlack has research support from ALSA, MNDA, Cytokinetics, Neuraltus and GSK, and consulting support from ALSA, Avanir, Neuraltus, Ultragenyx and Cytokinetics. Robert Bowser is the founder of Iron Horse Diagnostics. Paul Wicks (PW) is an employee of PatientsLikeMe and holds stock options in the company. PW is an associate editor at the Journal of Medical Internet Research and is on the Editorial Boards of The BMJ and BMC Medicine. The PatientsLikeMe Research Team has received research funding (including conference support and consulting fees) from Abbvie, Accorda, Actelion, Alexion, Amgen, AstraZeneca, Avanir, Biogen, Boehringer Ingelheim, Celgene, EMD, Genentech, Genzyme, Janssen, Johnson & Johnson, Merck, Neuraltus, Novartis, Otsuka, Permobil, Pfizer, Sanofi, Shire, Takeda, Teva, and UCB. The PatientsLikeMe R&D team has received research grant funding from Kaiser Permanente, the Robert Wood Johnson Foundation, Sage Bionetworks, The AKU Society, and the University of Maryland. PW has received speaker fees from Bayer and honoraria from Roche, ARISLA, AMIA, IMI, PSI, and the BMJ.

Wow. Just wow!