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Joel's Log

Prehistory:
I tool all year 2016 Accutane, 9 months 30mg,last 3 months 10mg a day. Meanwhile very dry skin / eyes, Mid-July 2016 extreme bacterial neck&faceskin infection -> antibiotics, often severe infections/flu in 2016. After Accutane to summer 2019 daily retinoid face cream. Fall 2017 Myalgic Encephalomyelitis outbreak after severe flu. Since spring 2018 disabled and hous and most time bed-bounded. Symptoms: all from M.E. and clear Accutane symptoms such as dry skin, eyes, etc.
During illness / last years I ate also very "healthy" food, lots of eggs, carrots, sweet potatoes, pumpkin etc.
 
March 31, 2020 Start: Vitamin A diet.
Diet: rice white / brown, black beans, rump/-beef and turkey on grill (so without oil-very rarely in the pan with olive oil), water, salt / pepper, from time to time apple/-juice/-sauce & pineapple
 
From mid-June the condition got worse, in the middle-end of July I added daily a teaspoon of walnuts/chia/flax/thistle combi oil and every second or third day vitamin e capsule (rice oil) ->condition a bit better again.
 
From 28.7.20: expanded with: quinoa, blueberries, macadamia nuts, naturally cloudy apple juice, whole grain rice noodles
 
Planned further additions (not safe yet) : Brazil nut, garlic, millet/sorghum, potatoes, ginger, white onions, dried dates / raisins / figs, maybe cauliflower, artichokes, turmeric, radish, beetroot red, parsnips, almond milk and possibly spelled bread / flakes /- general products, baking soda, honey, apple cider vinegar
 
 
Questions & problems:
Have extremely high uric acid values ​​through the diet - now also a kidney stone in the ureter which I need to clarify. Very acidic pH urine value.
Could the deterioration be an initial worsening (even if it didn't feel that way since clear vitamin A symptoms were not worse) and oil& vit E & loosening slows down the detoxification and caused the improvement?! -> so how to distinguish slowdown & real improvment/better body feeling ?
 
I can tolerate the extended foods without problems or even a good feeling - don't know how I can interpret that. I have never had a clear deterioration after any foods like others with vitamin A Toxicity.
 
Blood values:
04/21/20: Vitamin A 670ug / l (200-1000 standard)
06/15/20: Vitamin E 5.5mg / l (5-20 standard)
 
Supplement additions: Vitamin B, C, D+K, Cistus Incanus, Ashwagandha, zinc, magnesium, copper, selenium, mineral complex, essential amino acid complex, glutamine/glycine/ taurine/SAMe, choline citrate injections from time to time, medical cannabis from time to time, binding agent moor / humic acid.
 
Last week added: Maitake, CBD oil, vitamin E
 
Thanks for reading!
Arena has reacted to this post.
Arena

Thanks for sharing, Joel! You have been through a lot, hope you keep your head high! Look forward to the day you write about great eyes and greath health!

Joel has reacted to this post.
Joel

Joel, things that help me in this marathon are fresh air, exercise, sweating and showering immediately, sunshine, drinking water, showering before bed, keeping the eyes, nosrils, teeth clean.  Peeled apples and a nice mantra like "all is well".  The spa life, FTW!

Joel has reacted to this post.
Joel

Update new Blood Values:

20/08/20: Vitamin A 440ug / l (200-1000 standard)
20/08/20: Vitamin E 5.3mg / l (5-20 standard)
lil chick and Arena have reacted to this post.
lil chickArena

@joel 67ug/dL down to 44ug/dL in 4 months, that's a nice change.

puddleduck and Arena have reacted to this post.
puddleduckArena

Yes, agree, nice change! Sorry to hijack your thread here @joel, but I’ve been under the impression that both you and I have had some difficulties with not feeling good/worsening of symptoms, so I wonder why that is, when we both have values that have dropped considerably, should we not have been feeling better? I am scared of people ascribing everything to «detox», can somebody explain what is actually happening, or is it too complex to understand?

Arena, I'll pop in and say you sure aren't alone.  I spent some time on another thread waxing on about a return of a hated symptom, and blaming it on tomatoes.   But how do I know it was the tomatoes I ate this week, and not the 10 years of cod liver oil I ate in my forties finally doing it's worst?

It seems endless. 

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puddleduckArenaSussan

Exactly this, @lil-chick! If I take a step back and think about the discussions on this forum, we are just a bunch of guys trying to get better, some are ahead, and some are way back, like myself, so many scientific articles floating around, some of the people understand them, some are trying and some are not trying to understand them, but I can’t shake off the feeling that we are all just floating in outer space having no idea what we are doing, I just hope this VA chord leads back to earth, but until then, why on earth are we not feeling continously better when VA serum levels drop if that was what happened for Grant!

lil chick has reacted to this post.
lil chick

I guess the short answer is serum isn't everything.   I think we know that. 

It seems so very hard to get off of VA Overload Island.

And are all problems fixable?   I mean, there is hope.  But damage happens.  Should I just be glad I've halted progress on some fronts?

I also think we all do see or feel progress here, or we'd be gone. 

 

 

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puddleduck
Quote from Arena on August 27, 2020, 1:40 pm

Exactly this, @lil-chick! If I take a step back and think about the discussions on this forum, we are just a bunch of guys trying to get better, some are ahead, and some are way back, like myself, so many scientific articles floating around, some of the people understand them, some are trying and some are not trying to understand them, but I can’t shake off the feeling that we are all just floating in outer space having no idea what we are doing, I just hope this VA chord leads back to earth, but until then, why on earth are we not feeling continously better when VA serum levels drop if that was what happened for Grant!

I don't think we have seen any levels posted below 30ug/dL yet, @bella is close, and she feels much better close to this mark.   The mark set by some is to get to 20ug, but I don't recall anyone getting there yet.  I think alot of us are really toxic and getting down to and below 20ug will take a loooooong time.    I wish I had easy access to testing, I have no idea where I am at.   Feels like at close to 2yrs low VA, I am half way there.

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Bellapuddleduck