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Questions about additional supplements
@jiri and about the herbal supplements, don't you think that they can support detoxification and the organs maybe? The problem is that, for example, cistus is an antiviral therapy for ME / CFS and I have been taking it since last summer and it felt like it helped me a bit or contributed to the state of health. So somehow I have to find a way between Vit A detoxification and ME/CFS therapy. I'm pretty sure, Vit A is almost certainly not the only reason for my condition. But I'll try to drop some things. One last thing, I thought Vit E should also be avoided because it is fat-soluble and can make Vit A detoxification worse? But yes I also read that it can help with vit A, so confusing!
@r-2 I am now relatively certain that Accutane and Vit A have contributed to the outbreak of this disease. The causes are unfortunately not explained yet, but I think Vit A and Accutane were my exposure. Small example, Cranio-cervical instability is a newly known cause for some, so it may be that vit A and accutane have worsened my hormones, immune system, collagen etc. and as a result the viruses could more easily damage the ligaments and lead to Cranio-cervical instability(CCI), just as an example. So everything is a bit more complicated. At least I'm the typical ME/CFS patient with typical symptoms and abnormalities, so don't think that it's "just" a medication damage or a Vit A poisoning, there has to be more to it. But maybe the detoxification helps me a little bit or more and that would be a great success!
@jaj Yes you are correct, think it is more a trigger of many bad things like other diseases, but not the sole cause of diseases like mine. But also think it makes sense to tackle the vit a detoxification in the case of a chronic illness, since it is an additional burden.
@joel We have no idea how some herbs or drugs work in the human body. Most drugs and herbs that make you feel better, because they stress your body so you pump more stress hormones, but after that crash will follow. The only think what your body needs are essential macro and micronutrients from normal food. Not some magic herbs from Madagascar or whatever. Anyway CFS/ME is made up term. It is just another symptom of some systemic issue in the body. It is not "disease". Of course you have fatigue when your body doesn't work how it should. If you want some help you should write everything about you. Your health history. What was and is your diet etc..
@jiri Can you maybe tell me why you would recommend taking Vit E and Vit k2, even though they are fat-soluble vitamins and can possibly make Vit A poisoning worse if I understand it correctly.
To Me/CFS, that's your opinion, which I accept. I can only tell you the following, it has been classified as a separate disease by the WHO since 1969. The symptoms are not just "fatigue". Of course there are all diseases and syndromes that express themselves in fatigue, but ME/CFS is much more and not just a nice description of "fatigue". The main symptom is the neuroimmunological deterioration after even the slightest exertion. I did not make the diagnosis myself, but got it after a year of doctors odysee. Furthermore, the Canadian clinical critics assess whether this disease is present or not. I am also with specialists who deal specifically with this unfortunately still unknown and often misunderstood illness. If you are interested google Me.pedia and Myalgische Enzephalomyelitis and you will find out that there is much more than fatigue and a description of the symptoms.
I can do that in time, but only everything that is relevant in connection with vitamin A I actually said, of course didn't want to keep the contribution for too long and tried to limit it to the essentials. Thanks yor your answers.
ps : since past 4 years I am trying to convince them I have Vitamin A toxicity , all they tell is I have GAD/ anxiety , depression and hypochondriac with a laugh .
@joel current medical care is useless for chronic/degenerative health issues. Everyone who is in this "business" long enough know this. That's why people like this know that they are on their own in this. So they don't bother anymore to consult something with doctors. Current medical care is good(excellent actually) in trauma/acute cases. So if you are injured or if you have some infection etc.. But forget that they will hel you with chronic fatigue LOL. No doctor will treat the real cause of chronic, degenerative health issues. They have zero knowledge on nutrition, they will not test you on heavy metals and other toxins, they will not talk about your life in general etc.. ANyway why would be vit E or K2 bad for vit A detox? Doesn't make any sense. Why should somebody take E or K2? Because most people are deficient? Also like I said you want "support" vit A detox but can't even tell me how much protein are you eating. Because without enough of all essential and non or semi essential amino acids you can't detox shit. Most likely your digestion is bad. That means you will have amino acid deficiency for sure. Look at topic I just created "electrolyte protocol by Gbolduev" How you want detox vit A, when you don't have even enough of amino acids to create systemic proteins like RBP or ceruloplasmin, feritin etc.?? But you really need to take some herbs. Yeah they will help you for sure.. If you want supplement that will help you buy some good quality hydrolyzed whey protein and maybe some hydrolyzed collagen. Mix 30g whey with 10g of collagen and drink it 3 times a day. That will boost your detoxification naturally. By taking herbs which you have no idea how they work in the body you will accomplish nothing. You feel good well ok great. people feel good on cocaine as well.. If you want your body to function properly again you need to stop everything from drugs, meds to things like herbs that act like drugs/meds. Taking in plenty of essential building blocks for the body so it can once again regain balance.. #runawayfromdoctors
Quote from r on April 13, 2020, 10:23 amps : since past 4 years I am trying to convince them I have Vitamin A toxicity , all they tell is I have GAD/ anxiety , depression and hypochondriac with a laugh .
Why you think I stopped going to endocrinologist(or any doctor for that matter) 5 years ago and stopped taking their stupid synthetic T4 meds... Guys you have a lot to learn.. 🙂
#runawayfromdoctors couldn't have said it better , they dont know shit about nutrition / diseases , they can only treat cough and cold . They have invented pretty cute names for stuff they cant diagnose , like IBS / CFS /ME / SHITYY /PITTY / ADD/ GAD . I wasted so much money on doctor . shitty doctors
Quote from r on April 13, 2020, 10:51 am#runawayfromdoctors couldn't have said it better , they dont know shit about nutrition / diseases , they can only treat cough and cold . They have invented pretty cute names for stuff they cant diagnose , like IBS / CFS /ME / SHITYY /PITTY / ADD/ GAD . I wasted so much money on doctor . shitty doctors
I have huge respect for surgeons, but not for drug dealers in white clothes..
Quote from r on April 13, 2020, 10:23 am@joel could you please point out all of your symptoms of CFS.
ps : since past 4 years I am trying to convince them I have Vitamin A toxicity , all they tell is I have GAD/ anxiety , depression and hypochondriac with a laugh .
They’re gaslighting you, and lack empathy for you. Anyone who laughs at your pain has NO RIGHT to make judgements about any aspect of your health or life in general.