Discussion

I needed to disable self sign-ups because I’ve been getting too many spam-type accounts. Thanks.

Forum Navigation
Please to create posts and topics.

Story / Progress - Donald

Page 1 of 5Next

Site updated. Broke the filters. Posting the updated version at the end of this post for ease of access. If it doesn't work or if there's any issues (ie blocking too much), send me a message here.

 

Thought it was time to talk about my issues. It's going to be a bit of a rambly mess to read. My apologies in advance.

Timeline first, I am now 33 years old:

When I was 16 I started getting itchy psoriasis. Now I know I was constipated from then onwards as well. The bristol stool chart I add here has helped me figure that out, where stool number 3 and 4 are perfect. The stool in the picture is made out of clay. Had chronic fatigue issues, very angry and easily annoyed at the smallest of things, I was not a pleasure to live with at the time. It all started at the same time as inflamed tonsils/step throat? There's a link to psoriasis there. Slept 11h on average with sometimes 14h a night. Started injecting vitamin B12 the next few years and this helped a lot, could literally feel when I needed a new one as I'd get cranky if I did too long without. I also started binge-drinking in my teens, only when going out in weekends though and never at home. Alcohol = increased bowel permeability I know now.

Visited a naturopathic doctor maybe 1,5 - 2 years after onset of symptoms who saw chronically slightly elevated lymphocites, he prescribed isoprinosine because he suspected a latent viral infection. Tested positive for eppstein-barr as well. This medicine "retrained" my immune system, I got flu-like sick. Felt better after my body cured the sickness, than I did before taking it. This was major step in my recovery. Pulsed this a few times and stopped because of it not helping anymore and it being expensive. Together with him being half the country away and me planning my sleep around the appointments, didn't help. Did not see a lot of sun in my teens, saw a lot of it in my childhood. Not a lot after my teens either.

Tried ketogenic diet a bit after. This helped nothing. Was a lot of nuts, olive oil, little bit of meat. Not sure about the veggies. I think it was okay? It was more than 13 years ago. But I did go mostly gluten-free from this point onwards. When I ate at my parents or grandma I would still eat gluten. Occasionally at home too, but not too often. This sort of helped a little bit. 

Psoriasis got worse over the years. Tiredness sort of stayed okay, slightly better over the years even and was manageable if I didn't have a job. Sleeping pattern all over the place, basically non-24. Every day I go to bed 40 minutes later and wake up 40 minutes later. Doesn't matter whether I have a job or not. So every night got shorter till I just couldn't go to sleep and still had to go to work.

Only treatment for psoriasis that sort of helped was UV-B therapy. But took a long time to take effect and gave me red, dry and itchy skin very easily all over my body. And I did not stay clear for long. I assume now this was retinol esters? UV-B for psoriasis is 311 nm. "Retinyl esters, a storage form of vitamin A, concentrate in the epidermis, and absorb ultraviolet radiation with a maximum at 325 nm." The range they absorb UV radiation is from 300 - 350 nm with a maximum of 325. Coincidence? Maybe different retinyl esters absorb different wavelengths more efficiently?

https://pubmed.ncbi.nlm.nih.gov/14708621/

[ignore the rest of the article and its conclusions, just posting it here for the wavelength]

I think when I was about 28 I started another ketogenic diet trial, together with intermittent fasting and full-body calisthenics at home. After about 9 months of this I was close to free of psoriasis, while having seen no sun. I felt the best I had ever felt.

Diet was mostly onions, broccoli, cauliflower, spinach, leafy greens, homemade sauerkraut, 3 egg yolks every day. I think maybe 70% of the vegetables was onions though. Everything was SMOTHERED in butter. Needed to be in ketosis after all. 2 pieces of meat every day. So 2 sausages or something. 2x a week fatty fish from a tin. Smoked mackerel, sardines etc. Liverwurst quite often. Made my own chili con carne quite often as well. I did 1 liver flush in this time as well. Took the juice of 3 lemons per day. Lots of heavy cream in coffee. Lots of butter in coffee. But I also quit coffee the last 5 months of this period. Lots of mascarpone cheese with blueberries and avocado. Lots of homemade sauerkraut. Took glutamine in high dosages. Took vitamin B5, B2, B3 at night. Probably a multi as well. And of course the B12 and folic acid. Did some salt flushes in the morning as well. So a lot of things tried and not sure what combination of things actually did it.

But as I said: after 9 months I felt great. Tinnitus? Gone. Tiredness? Gone. I slept a full night and woke up refreshed. I would go to bed at normal times and wake up normal times. I'd sleep maybe 6h every night and be refreshed. Down from the 9,5-10h that was average now. I now realize that this was the first time I wasn't constipated in my life. I had soft green but sticky stools. Switched diet up again a bit because I felt great, ordered some more carby food. But still stuck to the intermittent fasting thinking this was the main reason it all went so great. This went great for about 3 months and then the psoriasis came back.  Manageable though, till it wasn't.

At that point I went carnivore for about two years because that was all the rage. I thought it was the high meat, and keto + intermittent fasting part that made it all work for me. Nope. Psoriasis got worse in some ways, but also better at the same time in other ways? And I couldn't do no veggies/carbs for more than 2 weeks no matter how much I salted/took magnesium. Biggest cramps of my life in my lower belly, and wake up at night with cramping calves where I'd have to stretch for 5 minutes. And wake up again multiple times that night. But I also took a  lot of liver, thinking this was good (paleolithic ketogenic diet, from paleo medicina). They cured cancer and what not with their diet. Published about it and everything. I got joints that kept inflaming, one toe would keep hurting every step. And I could put no pressure on my sternum, it popped and was painful. Uric acid in blood that went skyhigh.

From this onwards also IBS issues. These sort of but not completely disappeared when I made amasi/maas and drank I think a cup per day for a month? It's a mesophilic yoghurt that can be made at room temperature. Very delicious. There's a lot of info out there that psoriasis is caused by a disrupted microbiome. Some article talked about IBS being cured by yoghurt after people eating it for 6 weeks I think? 

After a while I tried keto again, with vegetables. Also ate quite a bit of cheese. Tried the homemade, and storebought sauerkraut. Psoriasis still got worse... and the sugar cravings stayed and were really hard to suppress. I did not endulge often. I have had a sweet tooth since my early teens. I had cloudy urine once in a while. Not very often, but often enough to have me worried. It got clear when I added vinegar to it. So I assume it's calcium phosphate. This went on for about 15 months. Tried low veg carnivore keto again, but with liver (who knew it was bad!!). Cloudy urine after eating liver was close to 80%-100% chance so at the time I was thinking purines. Kebab ordered from the city maybe 40% chance. Ate a bag of cookies. Cloudy urine. But if I followed keto with mostly onions, little bit of meat I'd feel fine (too much meat: cloudy urine). Eat at grandma, just sandwiches: 30% chance at cloudy urine. But not always.. and not always with the same foods. Difficult to track down.

Tried the eggs yolks again, 1-3 per day. Thinking it was thát what helped me feel so great the years before. Gave me major anxiety everytime I tried. At the time I thought they were making me overmethylate. Made me feel horrible and increased my anxiety big time everytime.

At 32 years old I tested for positive for HemoPyrrolLactamUria (HPU). Took the associated minerals and vitamins. This helped a lot, but not enough. At least another part of the puzzle to me. At some point I started making Reuteri Yogurt with how Dr. Davis makes it. Brainfog I always had after eating, but also after concentrating on a task for a while. Gone. Totally gone. I felt like a new man. Cloudy urine stayed and this had me the most worried. Since this time brainfog sometimes returns... I make reuteri / sibo-yogurt according to his recipe and it'll go away again. Reuteri made my psoriasis less wet, and less itchy. It definitely took care of some bugs in my intestine somewhere. But the psoriasis seemed to encompass larger areas.

But: see it mentioned often when on HPU protocol that heavy metal toxicity will be an issue after supplementing for 2 months and you need chelators. So I took..... chlorella daily for 3 months. Very high in beta carotene. Took maybe 9g per day for a few weeks. Foamy urine. But my (paranoid) anxiety I had the past 3-4 years disappeared when I ate bunches of coriander-leaf. I'd get major anxiety when it was in my colon... but the moment I passed it: all anxiety gone. Randomly found a youtube comment talking about vitamin A being a poison... and it started connecting in my head. Google rabbit hole and I ended up here, saw some high carotene foods listed and more dots connected. Also got red itchy rashes when stools passed certain parts of my intestine. Anxiety when it was in that area as well. The itchy rash would follow the stool down and would disappear as fast as the stool passed that area. But also: When I noticed the rash and itchiness that was also when my urine would be cloudy. When the urine was cloudy I also noticed a heightened anxiety. Heightened anxiety... see cloudy urine. Anxiety goes up even further. You can imagine.

Of course I instantly went low vitamin A. I think I took maybe cod liver once to test and yeah of course cloudy urine.

So january first this year... start off the new year shitting by doing a liver flush the way Andreas Moritz explains it. Andreas Moritz does say: when you do a flush, keep flushing till no more stones come out or you leave the liver in a toxic state. Maybe I made my situation worse 4 years ago by only doing it once, better to not do it at all then. First time I did a liver flush since that psoriasis-free moment, and I got twenty stones total with two green stones as big as my smallest pinky bone. A lot of my health issues lessened with that first one, I do not feel like I have to go to the toilet every 20 minutes. I did not have a high colonic irrigation after this first one.. but did with every flush after. And the big success for me: no more cloudy urine. The cloudy urine period was maybe 15 months total with it happening once every 2-4 weeks? Maybe I had a hint of cloudiness one time after the first flush. Also I felt like I needed less minerals (magnesium/potassium). After this I also went full retard with the psyllium husk fiber, and beans, like someone else on this forum. This dislodged even more small ones every day the few weeks after. Glassy green to black ones a few times, but mostly tan ones. When the green to black ones came out I could feel pressure in my liver area, and see them in the stool the next day.  Next flush 3 weeks after only had small tan stones and was super nauseous during the flush. No nausea at the first one!

Third flush a month after the second I had 2 the size of my smallest index finger bone, 4 the size of my smallest pinky bone, 50 between that and pea size. And rest smaller stuff. If I count all the small gritty stuff It'd be 200 stones total. Digestion improved, massively. I shall be flushing again in 2 weeks.

So since the start of this year I mostly eat beans, onions, little bit of meat, 2 egg yolks per day. With sometimes a bit of sushi rice. And I feel a lot better than I have in a long while. I occasionally eat like crap...again.. and while before that'd give me cloudy urine instantly that no longer is the case. 

Sugar cravings are close to 100% gone after having taken the reuteri yogurt. It feels great to not be a slave to the cravings. Before this I could be standing in the sugary cookies aisle in the supermarket and stand there for 5 minutes. Before, with a lot of willpower, I'd walk off. But at home I'd keep thinking about walking back and buying some. There have been moments I'd go to the night-store at 3 am to buy cookies. I could think about buying cookies / sugary treats for two weeks before I'd give in and buy some.

Recently the psoriasis disappeared from my head (praise the lord) and appeared in other parts, like my lower leg and higher back. I feel like certain parts of the liver or intestine are connected to the skin in some way. This was either after the HPU minerals with coriander-leaf and chlorella (which gave me green bily stools). Or it was after the first liver flush. I do not remember exactly. Too many things tried over the years!

I also took seed synbiotic for 3 months about 9 months ago? This also helped a lot with normalizing bowel movements... and the lower intestinal pain was gone after this, or mostly gone. I still take these sometimes. I'd rather get a full (lab-grown?) fecal transplant probably, but getting a good (tested) source is difficult. And that is a major, major gamble... and why risk it, when right now I think the future is actually very bright for once?

 

Ublock origin filters: Updated 21st of June 2023. Had to add another div.

Install ublock origin in your browser. This link is for chrome. You can also get it for firefox, or edge and they should be in the official browser addon stores. No clue on apple stuff.
If you already use an adblocker maybe this line will work in their custom filters as well.

Click the name of the person you want to block, under their avatar. This should give you their profile link. Copy that link. Click the extension, go to the dashboard. To the "My filters" tab. 

Add the below text to the filters. Change the link to the one whose messages you don't want to see. It works for me when I am logged in, it doesn't seem to work when not logged into an account. No guarantees it does for you nor how long. Had to write this myself. Maybe I'll make a post in my own progress thread and keep it updated. My own name as an example and some others.
ggenereux.blog#?#div:-abp-has(> div > div > div > div > a[href="https://ggenereux.blog/discussion/profile/donald/"])

Uploaded files:
  • Bristol-Poop-Charts.png
Jenny, puddleduck and 4 other users have reacted to this post.
JennypuddleduckHermesMargoAndrew BJoe2

@donald Thanks for posting this. Honestly, I'm amazed about the fact that our story are VERY similar. Psoriasis started around the same age than you, and I have tried many things over the years to get rid of it. Currently on a biology PhD 

I've tried the same diet shifts that yours, and had the same experiences. The first time on IF + keto, psoriasis improved a lot after many months, but then it started to be hard regarding the fatigue, and the "deep feeling" that it wasnt curing anything + the craving. And I also dvlpped upper right quadrant pain on this diet, that never went away even when stopping high fat. I also had very short but bad episode of binging (like at wedding etc. where I would allow myself to relax on the diet) - overall, psoriasis improved in some ways but worsened in other. 

So after a while I started to add back some carbs, and it was easier on the mind/craving/fatigue/muscle cramps but the pso came back with a vengeance. Then over the years I've tried different forms of carni/keto (and MANY diet shift), but couldnt obtain the improvment that I first had while trying keto for the first time. And as time went on, it was more and more difficult to stay on low carb (high stress load) without having very low blood pressure, no libido, almost fainting after exercising despite more than enough kcal on paper. And of course, the cravings.

The UV-B is the only thing that helped, but I don't believe it's linked to vA but to the regulation it can bring to the Th profile. It reduce Th1 and increase Th2 (Psoriasis is Th1 dominant, and I have blood test results of this) so it bring back balance of the Th at the skin level, thus lowering symptoms for a couple of days/hours.

I'm on a flush journey as well, as one time it did brought so much clarity of mind and some of the pso lesions disappeared despite a regular diet. It's the only procedure that seemed to helped, and I can "feel" that it's the way to go for me. I've written previously on this network about it, and I will update my post as time goes on. I feel it has nothing to do with vA toxicity but everything to do with liver congestion and cholestasis (vA tox can results in cholestasis, but most of the time its not the only cause except for very specific health nuts with a high liver/bCarot consumption like juicing etc IMO)

The flush that brought the most improvment were the one with BIG congestion part removed (like big and very deep green like emeralds) so I'm trying to improve my flushing procedure in order to maximise the results.

Lets keep in touch !

puddleduck, Donald and Joe2 have reacted to this post.
puddleduckDonaldJoe2

I'll definitely keep this updated. I did search the forums before and a lot of people with psoriasis end up here for some reason. 

Another thing I did when I was psoriasis-free and what seemed to help: epsom salt baths. I had read the same article I think Jenny posted. About SIBO being an adaptation to a sulphate deficiency. Sun-light creates cholesterol sulphate in the skin.

Maybe there is multiple ways where sunlight helps someone with psoriasis. The UV-B and vitamin A thing was just a suspicious coincidence I saw. 

I also see you read Haines Ely's work on psoriasis. Dermatologist said I have both seborrheic dermatitis and psoriasis. I tried Ely's protocol minus the antibiotics and this seemed to help. I would be psoriasis clear in 2 months. But the moment I quit ox-bile it would return. Maybe I had a severe bile-flow problem and flushing took care of some of that? Maybe you are right and it's just liver congestion and cholestasis. And even then I'd like to know why/what caused it and how do I fix this? Is the liver congestion and cholestatis a symptom of something else, or a cause?

I do believe a low vitamin A diet is part of a succesful strategy, even if it is not the cause of our issues. Maybe ancestrally we would've been able to deal with a moderate to slightly higher vitamin A diet easily. But we live in an incredibly toxic world these days.

puddleduck, Andrew B and Joe2 have reacted to this post.
puddleduckAndrew BJoe2

@donald I think the severe bile flow problem might be the angle to work on. When I went high fat, high meat (taurine) and liver (choline) diet that's when my psoriasis went away. Until the vitamin A got too high and/or my liver got worse from eating liver or the fat or the low choline. Even 2.5 years into the Vit A reduction I still didnt have great bile flow and eating 3-4 eggs a day has helped plus betaine foods. Bowel movements improved plus fat digestion improved from suspected better bile flow. Latterly I've been increasing fat a bit plus now able to digest fat better plus increasing cruciferous vegetables, sulfur foods and fibre with the aim of improving bile flow. Not saying it's only eggs but improving bile flow being what is important. Liver function and the enzymes improving. B vitamins working better (moderate protein rather than very high helps B vitamins as discussed in another thread).

puddleduck, Audrey and 2 other users have reacted to this post.
puddleduckAudreyDonaldJoe2

@mat pls share your experiences in liver flush topic. Btw I have much better vision after the flush I did 5 days ago. I have blurry vision a lot. Now it's like 70% better.. Eye health are connected to the liver a lot. Can't wait to see results after more flushes..

puddleduck, Donald and Joe2 have reacted to this post.
puddleduckDonaldJoe2
Quote from Donald on March 9, 2023, 7:51 am

I'll definitely keep this updated. I did search the forums before and a lot of people with psoriasis end up here for some reason. 

Another thing I did when I was psoriasis-free and what seemed to help: epsom salt baths. I had read the same article I think Jenny posted. About SIBO being an adaptation to a sulphate deficiency. Sun-light creates cholesterol sulphate in the skin.

Maybe there is multiple ways where sunlight helps someone with psoriasis. The UV-B and vitamin A thing was just a suspicious coincidence I saw. 

I also see you read Haines Ely's work on psoriasis. Dermatologist said I have both seborrheic dermatitis and psoriasis. I tried Ely's protocol minus the antibiotics and this seemed to help. I would be psoriasis clear in 2 months. But the moment I quit ox-bile it would return. Maybe I had a severe bile-flow problem and flushing took care of some of that? Maybe you are right and it's just liver congestion and cholestasis. And even then I'd like to know why/what caused it and how do I fix this? Is the liver congestion and cholestatis a symptom of something else, or a cause?

I do believe a low vitamin A diet is part of a succesful strategy, even if it is not the cause of our issues. Maybe ancestrally we would've been able to deal with a moderate to slightly higher vitamin A diet easily. But we live in an incredibly toxic world these days.

I too have both seb derm AND psoriasis. But honestly, I'm not even sure that's relevant... 

I have tried the sulphate strategy and it didnt help. So, at least for me, I'm not sure that the UV-B helps because of cholesterol sulphate made, but more because of the Th regulation. I could be wrong ! 

Dr Ely's plan did nothing either, Ox bile don't seems to help. TUDCA will slowly give me sulphur gas, and I'm trying UDCA at the moment (3months so far) and tho it doesn't seem to help the pso (yet?) my stool are much browner which is a good sign. I'm hoping that this, in conjunction with the flushes will help. Time will tell, but cholestasis and sludge reversal with UDCA can take a long time IMO (6months-1.5year in the litterature)

@jiri Too soon to tell. I had great improvment in the past (HUGE mind clarity, digestion and pso improved) but temporary and I think I should have pushed further and keep going. In any case, I'm convinced that it's at the very least a great tool to use.

puddleduck, Andrew B and 2 other users have reacted to this post.
puddleduckAndrew BDonaldJoe2

@mat yes you should keep doing flushes until nothing comes out. I did the same mistake and wasting 10 years of my life basically..

puddleduck and Joe2 have reacted to this post.
puddleduckJoe2

@donald Hey mate, do you have any progress so far ?

puddleduck and Joe2 have reacted to this post.
puddleduckJoe2
Quote from Mat on June 10, 2023, 3:03 am

@donald Hey mate, do you have any progress so far ?

Hello Mat,

Not sure! Everything is still a work in progress. Did some more liver flushes and got rid of a lot of stuff. Many stones (~12 total) about the size of my thumb nail, and some smaller ones. Psoriasis wise it seems to itch again and moving around on my body, some places disappeared... some appeared. There is this cycle right now of: do liver flush -> 1 week of PERFECT digestion with nice dark brown and good consistency stools, I have little to no psoriasis itch and it is less inflamed. No matter what I eat I feel great in that week. Then 1 week of okay digestion, 1 week of bad digestion, 1 week of putty coloured stools with no bile flow. This can also be measured by my FPS (farts per period). A week of no farts compared to fart-city. But with every flush I get more days of perfect digestion. I also take chanca piedra for two months now, has definitely (?) helped. 

I can eat a lot more stuff than I could before, including wheat products. Even stuff with carotenes/vitamin A that before would give me garuanteed issues. I may have been overdoing this a bit and been undoing some progress. Feel like I can finally exercise as well with proper protein digestion, getting great muscle gains with little to no effort.

When I did a liver flush and got rid of a fat stone my sleeping rhythm got perfect. I went to bed at the same time (albeit a bit late) and woke up at the same time. Then another flush later I went to going to bed even earlier, and waking up earlier. Either that or it is because I switched out my led lamps for halogen lamps at the same time. But there is a connection to sleep and liver health. Also 4 years ago when I did my singular liver flush + ketogenic diet, where I lost a LOT of pea sized stones in my stool just by the sheer amount of bile I produced.. my sleep was the best it had been in years.

This all considering for 10 years I had sleep where I went to bed every day 40 minutes later than the day before. And I'd wake up 40 mins later as well.

How about you? How is your UDCA experiment going? Any progress? I do like the bile salts + flushing theory, makes a lot of sense to me. In my "bad week" I occasionally take a bit of ox bile with meals as well. In the first few months that I started with flushing I had a lot of sludge coming out. Sometimes my stool would look like I rolled it around in ground up pieces of rice. I also posted in the liver flush thread about my grandmother who had psoriasis and had her galbladder removed with a golfball sized stone in her gallbladder. So I definitely know I'm on the right track.

puddleduck, lil chick and 2 other users have reacted to this post.
puddleducklil chickHermesJoe2

@donald Thanks for the news ! I think you're on the right track as well. 

I keep going with the flush as well, tho I seem to benefit less than you. I do have darker color stool after flushes as well, but temporary too. Not much regarding the pso yet. I have stopped the UDCA after 7 months or so of use since I'm not sure it helped at the end after the initial benefits I noticed from it. 

I'm trying a new supplement form, which is "beet flow" who has very very good reviews. I've talk with multiple people that have tried many things to get that bile flow moving (Ox bile, TUDCA, Taurine, GB formula, strong bitters etc..) and they were all saying that it was the best supps they tried. I think that where ox bile/UDCA would "give more bile" while you're using it, it does nothing to improve the "sticky bile pool" (maybe UDCA does a bit) and the stuck liver ducts. Liver flush should help over time but the constant tenderness that I have under the right rib cage make me think that maybe I need to find more help regarding that. I have started yesterday very slowly and it's too early yet but I think that it improves (temporary) this chronic tenderness that I've been feeling for a couple of years now, since I tried keto in the past (which did clear my pso a lot too but I had to stop for the same reason as you - low electrolytes despite supps, no energy, huge cramps etc... after some time on it. This, and the pressure that appeared had me worried) 

Beet flow doesnt seem to be like any beet supps that I have tried. It's made with 100% beet GREENS (not the beet itself). It's made from empirical labs and is a bit expensive but who cares lol 

My diet is basically on the high fat/protein again since carbs shoot my blood sugar very high (tho it comes back very quicky - within 30min) but I noticed that carb worsen my pso. So I'm around 150g or so from low vA fruits. I'm eating 4-5eggs per day as well as a little butter. Other than than, low vA as usual with meat, fish and vegetables. 

I've been doing the flush every 2 weeks but I think I will try every 3 weeks now. What's your LF frequency ?

puddleduck, Donald and Joe2 have reacted to this post.
puddleduckDonaldJoe2
Page 1 of 5Next
Scroll to Top