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Story / Progress - Donald
That is an interesting experiment you're doing! If I may ask, why DF6? I see that there are several DF+number options, but they don't seem to explain why. I guess it's from different donors, and it's to allow you to try different ones if you're not getting the results you're looking for?
I find it hard to believe that just one time (even with 24 pills) is enough to do anything, but please let us know!
About the dating thing: I have found someone too. The best thing I have ever used is a homemade UVB device. Very handy, but I only use it on my face; otherwise, it would take forever. But at least my face is mostly clear (though I need to use it every other day to keep it that way) : https://www.uvb-311nm.com/fr/uvb-phototherapy/26-lampe-a-main-avec-minuteur-pour-phototherapie-uvb-311-nm-vitiligo-3760277444231.html
If you haven't tried it yet, you might want to! Finger crossed for your date, it's not easy with the P. for sure
Quote from Mat on July 8, 2024, 2:18 pmThat is an interesting experiment you're doing! If I may ask, why DF6? I see that there are several DF+number options, but they don't seem to explain why. I guess it's from different donors, and it's to allow you to try different ones if you're not getting the results you're looking for?
I find it hard to believe that just one time (even with 24 pills) is enough to do anything, but please let us know!
About the dating thing: I have found someone too. The best thing I have ever used is a homemade UVB device. Very handy, but I only use it on my face; otherwise, it would take forever. But at least my face is mostly clear (though I need to use it every other day to keep it that way) : https://www.uvb-311nm.com/fr/uvb-phototherapy/26-lampe-a-main-avec-minuteur-pour-phototherapie-uvb-311-nm-vitiligo-3760277444231.html
If you haven't tried it yet, you might want to! Finger crossed for your date, it's not easy with the P. for sure
Yes it's different donors. Says what they eat, vaccinated for corona or not. A little backstory with them, too. Mine for example is a pretty 38 year old female high level judoka who eats meat/fish once or twice a week. Only eats out of her own kitchen and never used medicine. You can download their blood and feces tests and see what specific ratio of bacteria they have. This one felt right.
I have tried the UVB in the past. I have a very similar handheld one. But it takes super long to get results. Multiple months at least for me and my skin will dry out. Rather get some sunlight in these beautiful summer months. And that's even looking past the point where the psoriasis is a symptom of something wrong somewhere else in the body.
Glad you found someone too! I guess we're all going to make it 😁
Hey Donald, how are you doing with this poop experiment? I guess it’s been about a month since you took it orally now.
On my end, I’ve been on a keto diet since September 2023, testing different antifungal approaches, but none have yielded results. The final phase of the plan is to try itraconazole (intracellular) and see how it goes. I have started last week. I’m giving myself until September, I think. But honestly, I have little hope that it will work.
I’m a bit sad about this likely failure, but I suppose the positive side is that I’ll be able to reintroduce some carbohydrates. This diet is really awful, especially when you’re doing sports on the side. I also wonder if I have more itching with this diet (especially around my beard)—maybe a bit less psoriasis on the scalp? Hard to say...
I’m continuing with liver flushes (about once a month on average), but I don’t really have any other ideas. I even tried taking mega doses of vitamin D (Coimbra protocol), monitoring PTH to maximize the biological effect—no impact.
I’ll try L. reuteri yogurt, but cow’s milk gives me phenomenal constipation; it’s just incredible. Within a few days, my digestion slows down significantly and then stops completely. It’s a bit like the phenomenon documented in infants with cow’s milk allergy and constipation. I think goat’s milk doesn’t have this effect on me, so I’ll give that a try.
And yes, I had forgotten that you had tried UV therapy. Honestly, it’s the only thing that keeps me from going crazy, as it prevents my face from being too severely affected. And it allows me to maintain a social life... But yes, of course, it doesn’t solve the problem unfortunately.
Anyway, I hope your date went well and that everything is going smoothly on that front!
Quote from Mat on July 29, 2024, 3:45 amHey Donald, how are you doing with this poop experiment? I guess it’s been about a month since you took it orally now.
No noticeable differences in psoriasis, or other issues. But my skin in the non-psoriatic areas has gotten softer. The same way reuteri yogurt did back then. An extra softness added on top of the already softer reuteri-skin. I possibly would've tried an extra double dose of the FMT if my issues were more severe and it wasn't so expensive.
Quote from Mat on July 29, 2024, 3:45 amOn my end, I’ve been on a keto diet since September 2023, testing different antifungal approaches, but none have yielded results. The final phase of the plan is to try itraconazole (intracellular) and see how it goes. I have started last week. I’m giving myself until September, I think. But honestly, I have little hope that it will work.
I’m a bit sad about this likely failure, but I suppose the positive side is that I’ll be able to reintroduce some carbohydrates. This diet is really awful, especially when you’re doing sports on the side. I also wonder if I have more itching with this diet (especially around my beard)—maybe a bit less psoriasis on the scalp? Hard to say...
I am thinking of going keto again as well. I think it only worked for me because of the insane amount of bile that came out during that time. And whether this cleared the liver congestion, or the bile kept a dysbiosis in check, or it was the body running on ketones. I have no clue.
Sad to hear the anti-fungals aren't working as envisioned. A fungal overgrowth is definitely one of those things I've always thought of in relation to our / my problems. If you can eat more carbs and digest more, and different kinds of foods I'd call that a win though.
About keto diet being a horrible diet. For sure. I hated not being able to eat with anyone ever. The meals just sucked and weren't tasty (sorry keto lovers). Don't get me wrong I love fat and oils, but not when it's the main ingredient. And not even talking about the flatulence at the start and the horrible bowel movements.
I’ll try L. reuteri yogurt, but cow’s milk gives me phenomenal constipation; it’s just incredible. Within a few days, my digestion slows down significantly and then stops completely. It’s a bit like the phenomenon documented in infants with cow’s milk allergy and constipation. I think goat’s milk doesn’t have this effect on me, so I’ll give that a try.
100% my issues are worse when constipated, and they are less when regular (when I go more than once per day I feel even better). Pagano who's had a lot of success clearing people with his diet talks about it as well; that you can't clear psoriasis with constipation. When my psoriasis started in my teens, it was accompanied by the worst constipation I had in my life.
I hope reuteri yogurt works for you, at least somewhat, as it did for me. Can always try one batch with cow's milk and see if it constipates. It creates the most thick and delicious yogurt I've ever tasted. The goat's milk version is quite tasty too but just a bit runnier.
Hope you're doing well otherwise!
"No noticeable differences in psoriasis, or other issues. But my skin in the non-psoriatic areas has gotten softer. The same way reuteri yogurt did back then. An extra softness added on top of the already softer reuteri-skin. I possibly would've tried an extra double dose of the FMT if my issues were more severe and it wasn't so expensive."
Well, I guess that's still a win, haha. So when you say "if my issues were more severe," would you say that overall your psoriasis is better with the flush and the low vA/bean diet after all? Or was it not that severe to begin with?
I am thinking of going keto again as well. I think it only worked for me because of the insane amount of bile that came out during that time. And whether this cleared the liver congestion, or the bile kept a dysbiosis in check, or it was the body running on ketones. I have no clue.
Sad to hear the anti-fungals aren't working as envisioned. A fungal overgrowth is definitely one of those things I've always thought of in relation to our / my problems. If you can eat more carbs and digest more, and different kinds of foods I'd call that a win though.
About keto diet being a horrible diet. For sure. I hated not being able to eat with anyone ever. The meals just sucked and weren't tasty (sorry keto lovers). Don't get me wrong I love fat and oils, but not when it's the main ingredient. And not even talking about the flatulence at the start and the horrible bowel movements.
As for me, the antifungal didn’t improve my digestion of carbs, which wasn’t an issue for me anyway. If anything, the persistent "liver pain" that I now have was triggered by my first ketogenic experience and has never gone away (it’s been years now). I just don’t understand what it is since the liver isn’t supposed to be "felt."
Good luck with keto if you decide to try it (again)! I had a similar experience as you. I initially tried a ketogenic diet five years ago, and it significantly improved my psoriasis. However, it also left me with a persistent "tenderness in the liver" after 3-4 weeks (the psoriasis didn’t start improving until 3-4 months in). After the initial improvement, my progress plateaued. The lack of energy, poor sleep, "liver tenderness," and severe constipation convinced me to stop after 7-8 months. And yes, I improved despite being constipated. Go figure... But usually yes constipation is not good
That’s why I tried again in September 2023, but it’s clear that this strategy has failed. During this keto experiment, all the other "bad symptoms" (except for low energy and poor gym performance) didn’t return, but neither did the "good" effects on my psoriasis. And I can’t figure out why! It seems that you also weren’t able to replicate the "good keto days for psoriasis." I’m curious to see if you can now!
Other than that, I’m okay. I just feel very tired of trying new things and having my whole life revolve around this psoriasis battle. Sometimes, it feels like it just can’t be beaten. I always hope that I’ll prove this wrong in the future!
I hope that you're feeling great as well friend
Hi Donald,
I’m here to provide a bit of an update. I’ve completed a year of keto/low-carb along with antifungal treatment, but unfortunately, it didn’t help as much as I’d hoped. I’ve concluded that while keto/low-carb might slightly improve my psoriasis, it doesn’t make a significant difference. I still needed to use UVB therapy and apply vitamin D cream.
I also tried a very high-dose vitamin D regimen for five months after reading promising studies on its effects on psoriasis, but unfortunately, it didn’t have any noticeable impact either.
Now, I’m back on a low vitamin A diet (mainly brown rice, beans, meat, egg white protein powder, macadamia nuts, blueberries, and peeled apples). I’m planning to stick with this while also taking binders with each meal and experimenting with NA. I’m honestly not sure what else I can try at this point.
How have you been doing? Any updates on your psoriasis? I believe this forum might be closing in early 2025, if I’m correct
Quote from Mat on November 4, 2024, 1:36 pm... I believe this forum might be closing in early 2025, if I’m correct
@mat Did you hear a rumor that I haven't heard? Because if you look at the blog, Grant had some people step forward to moderate, so he decided not to shut down the forum.
Quote from Mat on November 4, 2024, 1:36 pmHi Donald,
I’m here to provide a bit of an update. I’ve completed a year of keto/low-carb along with antifungal treatment, but unfortunately, it didn’t help as much as I’d hoped. I’ve concluded that while keto/low-carb might slightly improve my psoriasis, it doesn’t make a significant difference. I still needed to use UVB therapy and apply vitamin D cream.
I also tried a very high-dose vitamin D regimen for five months after reading promising studies on its effects on psoriasis, but unfortunately, it didn’t have any noticeable impact either.
Now, I’m back on a low vitamin A diet (mainly brown rice, beans, meat, egg white protein powder, macadamia nuts, blueberries, and peeled apples). I’m planning to stick with this while also taking binders with each meal and experimenting with NA. I’m honestly not sure what else I can try at this point.
How have you been doing? Any updates on your psoriasis? I believe this forum might be closing in early 2025, if I’m correct
Sad to hear you've not done better on this. I notice now winter is approaching. It is a bit worse. My head is worse, the rest is the same. My left shin seems a bit itchy past few days. That is usually a sign the psoriasis on my head will disappear and will migrate to my left shin. Which I prefer over it being on my head and face of course. Can't tell the mechanism, whether some part gets unclogged in the liver or more bile-flow so another part in the intestine has the wrong bacteria.
Liver flushes is still my one size fits all approach. I have lost a few larger ones a few weeks ago, but mostly a lot of sludge and smaller ones. It seems I am approaching the end of this, finally, after 2 years of flushes every 3 weeks. Either that or there are still one or more larger ones stuck in the liver. The gold coin grass instead of malic acid does seem to help (but more expensive) and chanca piedra helps as well.
Other than that I can basically digest anything and everything lately. No fartsy business anymore unless I'm close to needing another flush. I do think I way better when I eat less meat though.
I did try vitamin D in the past as well but I felt my vitamin D was getting too high. And all the rat-poison comparisons didn't help haha. Are you doing that coimbra protocol?
Oh and I've been adding smalls bits of olive oil to my regime for the past few weeks. It started to quiet down a bit after that as well. I know this goes against Grant's teachings on carotenes.
https://www.youtube.com/watch?v=h9K7JAcgRUs
I remember when I was ps0riatic free on keto I also just added tons of it to my coffee. Right now I basically quit coffee. Maybe 1 cup every 2-3 days. So I'm adding it to my mint tea, chamomile, chanca piedra tea, etc.
All in all I've found no magic spell that works for me. But I feel like there is a slow recovery happening over the past 2 years with the liver flushes.
Hello @donald , sorry for the late answer.
Yes, I tried the Coimbra protocol with very high doses of vitamin D and other supplements. Unfortunately, I didn’t notice any difference, so I stopped after five months.
I’ve taken a break from liver flushing (two months without any), but I might start again since I don’t have any other strategies at the moment. I’m also trying to work on my gut biome, but so far, without much success.
How are you doing? When you said there was a slow recovery with the flushes over two years, did you mean that psoriasis (slowly) improved gradually as well? I’ve done 42 flushes and, honestly, haven’t noticed any difference regarding my psoriasis. I’ve spoken with some people who experienced major improvements after more than 60-80 flushes.
I’m on the fence about it because it feels like the same argument you hear everywhere: “It works, but you just need to do more X”—just like fasting enthusiasts who claim you simply didn’t fast long enough.